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  ENDORSED BY

  The Federation of Patients and Consumers Organizations in the Netherlands (NP/CF)

  JMIR Journal of Medical Internet Research

  NVMA Dutch Association for Medical Administration and Information

  NVACP: Nederlandse Vereniging voor Addison en Cushing Patiënten

 
 
 

John Mack

Keynote 4

Friday, December 6:  

John Mack

Access, Quality, and Patient Empowerment - Can We Have It All?


More and more patients are using the Internet not just to seek information from various sources, but also to empower themselves by providing their own online sources of health information, establishing and moderating online support groups, and using e-mail to communicate with their physicians.

However, not all patients in all countries have equal access to health information on the Internet whatever the source. In many nations, including the U.S. and Europe, large portions of the population do not have access to the Internet because of a lack of technical infrastructure or for economic reasons.

To have true patient empowerment, more equity between the "have" and "have-nots" needs to be established. Only through a combination of Access + Quality will we achieve this Equity (i.e., Access+Quality=Equity).

While we may not be able to do much about the Access part of this Equity equation, we should do more about the Quality part. Much attention has been paid to commercial health websites with regard to privacy, ethics, and information quality guidelines and codes of practice (e.g., the Internet Healthcare Coalition's e-Health Code of Ethics). But, have we given enough thought to developing guidelines for patient-driven online activities?